Tag Archives: Grey’s Anatomy

Music is Pain Relief

I typically put up a post on my blog’s FB page every Monday with whatever is stuck in my head that week and I always hashtag it #MusicMonday and #musicispainrelief . Because researchers have shown that listening to music can release endorphins and relieve pain.

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Grey’s Anatomy, season 2, episode 5 “Bring the Pain”. Some pain management ideas are….more controversial. I’m just advocating for music.

…And if you know anything about me or have read more than three blogs, you know I live and die by my music. I always have something stuck in my head and Heaven help the person that might get a hold of my Spotify and wonder exactly how many people share the account. Spoiler: it’s just me, but I have everything from the Hamilton soundtrack to Lady Gaga to Eminem to Disturbed….to the Saturday Night Fever soundtrack…P!nk, Queen, Marilyn Manson, Tesla, Five Finger Death Punch, Supertramp, Bleachers, Melissa Etheridge…. I can do this all day.

Anyway…

The youngest and I went to go see A Star is Born last Friday and I cried. I cried for the last half of the movie. I cried for a few different reasons, some of which I don’t talk about. I’m getting off topic. My point is I’ve had this stuck in my head for four days already and music is pain relief.

Happy Music Monday! ❤ ~ Xun

I Believe We Survive…

I re-watch Grey’s Anatomy on Netflix. Over and over. It’s like comfort food for my soul and every time I watch another run through of all (now) 14 seasons, I find something else to hold onto, something else to relate to…..or occasionally, a lot like this week, something to connect to.

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It’s been a tough week. Hell, I always feel like I could pick a point in time and say “it’s been a bit of a rough ____.” (And on the other side of the coin, I could simply pick a point in time and just be grateful…I know.)

The story of this week in particular starts last weekend. We chose last Saturday to make the second of our annual pilgrimages to the 16th century… AKA we try to go to our state’s Renn Fest at least twice during the season. A handful of times through the years we’ve managed to go more than once or twice, but two trips is our goal. There are nine weekends in the “Faire Season”, and we always go on opening weekend because it typically falls on or very close to my oldest daughter’s birthday, so somehow in the last dozen years or so we have created a family tradition of going to opening weekend at RennFest as part of K’s birthday.  Our second trip is usually near the first weekend in October.

So we decided to go last weekend, and even though I love going, I also know I *will* physically pay for it in the following days. It’s a lot…a lot of people, and socializing, and walking, and being dressed up in full garb (dressing clue: boots then corset!!). It’s just a lot, so at the very least I am going to be extremely tired and sore (I once bruised my ribs from my corset). I have, in previous years, ended up in the ER at 2 am from a migraine, and the accompanying dehydration and exhaustion. I made the mistake of going too soon after radiation treatment and again ended up in the ER because my potassium levels were stupid low.

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Anyway, the point I’m getting to is that we decided to go last Saturday, so Sunday I was (predictably) very tired and sore, but certainly in much better shape than previous years.
Until…
Until I woke up on Wednesday knowing the coming storm of a menstrual migraine was on its way. I have …typically 2-4 days… a month that a migraine can take me down, or if I can’t fight it back hard enough and it gets too far out in front of me, it’s off to the ER. But I haven’t had to resort to an ER visit in well over a year.

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I spent Wednesday fighting, pushing meds and fluids. Lots of meds. Beating down the pain, refusing the nausea. I spent the afternoon laying on the couch with my favorite blanket, and finally ended up taking a higher dose of my pain meds and migraine meds and wandered up to bed early. Pulled the covers over my head and just tried to sleep so I could get away from the pain and nausea.
I woke up Thursday feeling a little better. I still wasn’t up to functional, but I was upright, eating, back on a mostly regular schedule of my meds, back off Imitrex, and doing 75%ish in life.

Except.
Except as I was settling into bed Thursday night, my *dh finally realizes I have been dealing with a lot for the prior 48 hours. After 2 days of me fighting from my soul to keep me out of the hospital, he decides to actually LOOK AT me and saw the cost of 2 days. I was really pale, my random black eye on my left eye swung in for a visit. Basically I look like I have been fighting….something.

 

I just looked at him…..

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2 days. Two DAYS. 48+hours TWO FLUFFING DAYS……

I feel like a ghost in my house. I have so much more to say…..so much….

but I’m disappearing…..

 

*dh= “darling” husband. Read it in whatever tone you feel would fit described sitch.

 

Quotations, quotations!

I don’t participate in many challenges. I’ve gotten a couple of shout-outs and met some incredible people through running my blog for the last *cough* years, but I haven’t really been structured enough to post regularly or get involved in group projects. I write like I live: a mom of 3, retired-Navy wife, creative mess (with a brain tumor). There’s maybe a little structure or predictability, but you have to look for it. And I do better on my Facebook Page.

But when I saw Wendy share her Quotation Challenge, I thought I’d jump in the pool too. Wendy’s a pretty awesome chick with an incredible story and I’m happy to share a little cyberspace with her!

Here’s how this works:

1. Thank the person that nominated you.
(Wendy, thank you for sharing such a cool challenge!)

2. Write one quote each day for three consecutive days (3 quotes total).
(Imma do all 3 at once, but please feel free to share 3 posts, or just jump in too!)

3. Explain why the quote is meaningful for you.

4. Nominate three bloggers each day to participate in the challenge.
(Kara, Sheldon, Bee, Tiara, Laura, ….just a few people that come to mind)

Wendy did all three of her quotes in one day and in the midst of everything I’m juggling right now, I think I’ll do that too!

Here are just a few of my favorite quotes. (I love words and I could do this all day)

Those who were seen dancing were thought to be insane by those who could not hear the music. ~ Friedrich Nietzsche

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You don’t have to know me well to know a couple of things: music is air to me, and I’m a dancer. The body doesn’t cooperate very well anymore, but the soul still dances. I do a “Music Monday” post on my FB page because they’ve shown that music reduces pain and I love music. All music. Seriously, if you see my playlists in my phone, you wonder how many people share my music apps because I go from P!nk to Bleachers to In This Moment to Queen, Bowie, Hellyeah, Skylar Grey, Apocalypica, Eminem, Fleetwood Mac, to Andra Day. I’m not even sure that covers the breadth of all the music I listen to. But my text notification is DMX and my ringtone is Led Zeppelin right now so…yeah. Music = air.

 

 

Meddle not in the affairs of dragons, for thou art crunchy and good with ketchup.

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aka: mind ya business.
…and I’m a dork that owns 2 full sets of “garb” and goes to Renn Fest every year. The Maryland Renaissance Festival is pretty awesome and always runs from the end of August to the third week of October and we try to go at least twice every year. Our village focuses on Henry VIII and is set around 1529. Our family loves all things Renn Fest and we’re happy to be hopeless geeks!

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Lexie: Grief may be a thing we all have in common, but it looks different on everyone.
Mark: It isn’t just death we have to grieve. It’s life. It’s loss. It’s change.
Alex: And when we wonder why it has to suck so much sometimes, has to hurt so bad. The thing we gotta try to remember is that it can turn on a dime.
Izzie: That’s how you stay alive. When it hurts so much you can’t breathe, that’s how you survive.
Derek: By remembering that one day, somehow, impossibly, you won’t feel this way. It won’t hurt this much.
Bailey: Grief comes in its own time for everyone, in its own way.
Owen: So the best we can do, the best anyone can do, is try for honesty.
Meredith: The really crappy thing, the very worst part of grief is that you can’t control it.
Arizona: The best we can do is try to let ourselves feel it when it comes.
Callie: And let it go when we can.
Meredith: The very worst part is that the minute you think you’re past it, it starts all over again.
Cristina: And always, every time, it takes your breath away.
Meredith: There are five stages of grief. They look different on all of us, but there are always five.
Alex: Denial.
Derek: Anger.
Bailey: Bargaining.
Lexie: Depression.
Richard: Acceptance.
Grey’s Anatomy: S6 ; E2 “Goodbye”

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Meredith Grey is my spirit animal. She and I have so much in common. She’s the stronger, smarter, badass surgeon version of me. We’re both only children, with a father that bailed to start another family. My mother is still alive and doesn’t have Alzheimer’s, but it does run in my family and when I did my genetic profile, it showed an increased risk for me. We both have three kids. And we’re both dark and twisty.

I can’t even tell you how many times I have written this entire quote out through my journals. I watch Grey’s on Netflix like comfort food for my soul. It’s my favorite place to be. And when I’m working through grief, I always seem to come back to this one.

I have a couple of people that come to mind I’d love to nominate, but I don’t want to put anybody on the spot. But if you’d like to share, please tag me. I’d love to see what makes everyone else tick. Or if you just have a quote, a mantra, a Psalm….anything that means something to you and gets you through the tough stuff (or the awesome days!) and want to just share in the comments, please do!

 

(& in other news, I have a draft for the rest of the updates I’m writing. March and April were insane!! But I promise I’m gonna close out the (overdue) updates this week.)

❤ ~ Xun

In the Matrix

Ho-LY ……well, shite I guess. Has it really been a month since I posted?!

Okay, well, lemme think. Where to start? Hair is still purple. Ish. With some white showing on top. Perfect for Halloween!

Life has blown up. And these days I am of the opinion we are all living in some demented SIM/Matrix world? Game?  And whoever is in charge of mine is FIRED!!!! And possibly dead if I figure it out.

I have been betrayed! All I can come up with was food poisoning, but oh my jesusmaryjosephmarklukeanddaniel my body betrayed me. Three days of rebellion and I will simply say it required A LOT of cleaning and culminated in me standing in the shower in tears pleading with God for control of my digestive system back. And now we must never speak of this again.

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Medical stuff? I am thiiiiiiis I  I close to throwing up my hands. I give up. I got all my tests and referrals done, saw the ENT surgeon, had the crazy sinus CT, she deemed my cyst too small for surgery and my deviated septum too slight to need repair. So, I took my crooked nose and off I went.

Labs and ultrasounds and referrals later, my pcm is determined to send me to GI because my liver panel was elevated, and my cobalt and chromium were also elevated. Yeah, they’re supposed to be. I set off metal detectors with my bionic hip.

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And I had MRSA for 3 months. Go away. No GI docs, no more tests, no more poking and prodding, enough. I’ll live or I won’t.

I even gave in, went *back* in and convinced pcm-doc to finally do a chest x-ray and send me to pulmonology. Since my lungs seem to work when they feel like it. I got the report from the chest x-ray. Other than the calcium granuloma in my right lung that I knew was there, it says my lungs are clear. Oh, and there’s degenerative changes in my t-spine. I need a new spine. Paging Dr. Torres…..anybody??

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Is that everything? I think? Hell I dunno anymore. Like I said, has it really been a month?? I’ve spent a vast majority of the past week retrieving my digestive system, but the 3 before that? School, house, kid, cats, tests, referrals. Yes surgery. No surgery. Oh, and an upcoming mandated pharmacy change because my insurance is full of assholes. So I don’t have a choice unless I want to pay for all my scripts.

It’s been a little crazy.

 

 

A Time to Every Purpose Under Heaven

I am always telling my kids that energy cannot be created or destroyed, therefore the energy that creates a life never really disappears, it just changes.

Some very good family friends of ours just lost their poochie yesterday and hearing the news drew me up short, like it always seems to do. It doesn’t matter if it’s a friend, family member, furry family, or a friend’s family member, hearing of a loss, a death, always takes my breath away. Grief is its own thing, and every person grieves in their own way.

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Lexie: Grief may be a thing we all have in common, but it looks different on everyone.
Mark: It isn’t just death we have to grieve. It’s life. It’s loss. It’s change.
Alex: And when we wonder why it has to suck so much sometimes, has to hurt so bad. The thing we gotta try to remember is that it can turn on a dime.
Izzie: That’s how you stay alive. When it hurts so much you can’t breathe, that’s how you survive.
Derek: By remembering that one day, somehow, impossibly, you won’t feel this way. It won’t hurt this much.
Bailey: Grief comes in its own time for everyone, in its own way.
Owen: So the best we can do, the best anyone can do, is try for honesty.
Meredith: The really crappy thing, the very worst part of grief is that you can’t control it.
Arizona: The best we can do is try to let ourselves feel it when it comes.
Callie: And let it go when we can.
Meredith: The very worst part is that the minute you think you’re past it, it starts all over again.
Cristina: And always, every time, it takes your breath away.
Meredith: There are five stages of grief. They look different on all of us, but there are always five.
Alex: Denial.
Derek: Anger.
Bailey: Bargaining.
Lexie: Depression.
Richard: Acceptance.
~ Grey’s Anatomy, S6;E2 “Goodbye”

The crazy thing is the day before yesterday, we were installing new curtains in our living room and I was moving things around on my mantel. My dog’s ashes are in a wooden box on my fireplace mantel because we lost her 14 months ago, and I haven’t been able to bring myself to bury her ashes with a tree like we planned to do.

Dera, my Border Collie, passed away May 31, 2014 and we had her cremated. We had just signed a contract to have a house built so we all said we’ll bury her ashes with a tree in our new yard in the Spring. But Spring came and went, as did Summer, and I looked at my family and said “I can’t do it. Not yet.”

So, back to the story, I was moving things around as we installed curtain rods and curtains, and I stopped and looked at Dera’s box and thought about how much I still miss her. And then the next day, our friends lost their dog. Dera played with him. I’ve known him since he was a puppy.

I know there are no words when you have experienced a loss. There’s nothing you can say. When you’re grieving, the kindest thing someone can say is simply “I’m sorry”. I wanted to throw something at the next person that said “It’s God’s plan” when I lost my baby girl.

I know birth and death is all part of life and a life truly lived means you experience losses, but in the middle of it all sometimes it’s hard to try to figure out the reasons or the plan. It’s all just so absurd….

Xunnie’s Adventures in Brain Tumor

(Good Lord, has it really been a month since I published a blog??!!)

Yesterday was my follow up with my neurosurgeon and my oncologist in Georgetown. It was time for a follow up as I close in on a year post treatment, and with a ER trip courtesy of THE WORST migraine I’ve ever had last month, everything got moved up just a little bit.

Yesterday was also the day that my Dad died 3 years ago from Cancer.

So when I had to call my Mom a year ago and tell her that her only child has a brain tumor, you can imagine how much that sucked. She was brave and strong and supportive, but I don’t doubt for a minute that when she hung up the phone she cried and threw things.

I’ve made it through a year. An initial brain MRI (non-contrast, 6/09/14), a follow MRI to confirm diagnosis (with & without contrast, 6/20/14), the addition of a neurologist into my roster of doctors, and finally a referral to Georgetown last July. Once I was up at Georgetown and meeting with a neurosurgeon and a radiation oncologist, plans were made, options weighed, and soon a treatment plan was drawn up. I have a Meningioma.

I say have because it’s still there, but that part of the story is coming.

I have a meningioma,  a type of tumor that is typically benign, and usually easily treated by removing the damn thing because it’s a type of tumor on the lining of the brain, or the meninges. But not mine. Nope. MY tumor is a meningioma, but it’s alllllllll the way under the fold of the brain, near the brain stem, and therefore inoperable. So my treatment plan was 5 days of stereo-tactic radio surgery, or roughly the equivalent of 30 radiation treatments.

I had the same mask made that Geena Davis’s character on Grey’s was seen in last season.

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For what it’s worth, I have to say the making and wearing of the mask (designed to keep me in the exact same position for treatment each time) was the weirdest part of the whole thing. It’s just a bizarre experience going through the molding of the mask, and then the clipping down of it each time you go in for treatment.

So I had the mask made, did the treatment, survived the side effects, and moved forward, ending last year with a three-month follow up on treatment with another brain MRI, which showed no change. The last year of my life could be tentatively titled “Is The Damn Thing Going to Kill Me?”.

(I have spent A LOT of time in CTs and MRI machines over the past year. Good thing I’m not claustrophobic.)

Which brings me to now. Yesterday’s scans showed….say it with me….. no change. (Possibly my least favorite phrase in the English language now.) But my docs all said that was mostly a positive thing because that meant 1) they had, in fact, diagnosed a meningioma correctly (Dr. Collins: “If it disappeared, we’d actually be more concerned.”) and 2) it’s not any smaller, but it’s not any bigger, there aren’t any more tumors, and that means it’s probably going to just stay put from now on.

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So, here we are. Me and…..Perceval? Harold? Irkle? He? She? It? needs a name since it’s me and this thing, likely for the rest of my life.

Today, I started processing this. This means it’s time to burn my mask, I think.

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Yes, I saved it. I brought it home after treatment. It means I fought back and I survived. But Dr. Herman burned hers when she decided against any more radiation. I think I may do the same.

I fought. I’m stable. I’m alive. And I’m done with radiation.

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The Damn Thing Is Trying to Kill Me

“No change.”

“No change.”

“We don’t see any change in the tumor.”

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The words no change are the most annoying and unnecessary jumble of letters in my life right now. I’m coming up on the anniversary of my tumor diagnosis. (Is that a thing? Should it be?) I’ve been through (pardon my language, but it’s oh so necessary) a fuckload of radiation that ended up being so much harder than I thought it would. Post-treatment scans said….wait for it….no change. So we keep watching. And we keep waiting. Because the surgeon really doesn’t want to have to dig that far into my brain.

You’d think that meant some kind of stability, right? I would, but it doesn’t feel very stable right now. I spent Monday night in the hospital with the worst migraine/tumor headache/I-don’t-even-know-what-to-call-it I think I’ve ever had. I have plenty of headache/pain meds at home and most of the time I can head it off before the pain in my head reaches unacceptable levels. As any chronic pain patient will tell you, there are truly only two kinds of pain….tolerable and intolerable.

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But everything ramped up so fast and got so far out of hand so quickly that I had no other choice than heading off to the ER.

I had taken meds at home trying to get ahead of the pain, and as I was finally taken back and able to be treated, the doctors and nurses tried dose after dose of some pretty heavy pain medications, anti-nausea meds, and she even threw in a dose of Benedryl trying to get something to affect the pain.

Hour after hour, dose after dose, attempt after attempt to beat the pain down. My pulse was varying between 108 and 118. My blood pressure was all over the place. I could feel my heart pounding in my chest and the nausea left me curled up into a ball.

Finally the doc decided to do a head CT to see if something else was wrong or the tumor had….I don’t even know what? Grown? Moved? Invited friends?

Nope. No change. “It just looks like the tumor is causing pain. We may have to admit you for pain management.”

I didn’t know what to do. I was laying there in so much pain, fighting so hard. But you wouldn’t know that just by looking at me. The truth is, when I’m “just laying there”, that’s when I’m fighting the hardest. I kept telling myself to breathe. I thought of the tattoo on my forearm, ana’laigh, Gaelic for “breathe”. I played through scenes from Grey’s in my head. I tried to remember lines from the show (did you realize that in the very first episode Richard tells the interns that “the 7 years you spend here will be the best and worst of your life” *but* in the last episode he tells the new interns “the 5 years you spend here….”?)*, and I had Drifting Further Away by Powderfinger playing in my head.

I fought back. I got the pain back under a 4 and my pulse back under 100, so I asked to go home. But for the first time I was standing on the line between being hospitalized for this damn tumor and being able to go home. Fuck you, tumor.

And of course, I was blogging all of this in my head. As a writer, beneath and beyond the pain, that’s how I survive.

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*I’m a hopeless Grey’s fan, don’t judge me! 😉

Dear Shonda

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These words have given me a lot of comfort. They are written in no less than 5 of my journals. Every word is true. Grief has 5 distinct stages, and everyone grieves in their own way. Still, somehow, knowing all of this, I sat on my couch last night and watched Grey’s Anatomy in tears. By the end of the show I was a sobbing, hysterical, heartbroken mess. Even my husband, who patiently puts up with my love for Grey’s, sat next to me on the couch watching it all happen and muttering “no…..no…..NO!”.

Shonda, I have watched through all (almost) 11 seasons now and accepted the losses of the characters that just had to leave, had to move on to the next thing for them. Burke, Finn, Addison, Erica, Sadie, Izzie, Lucy, Robert Stark, Teddy, Leah, Shane, and most heartbreakingly….. Cristina.

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I watched, heartbroken, as George died. Tearfully as Adele died, and Richard had to move forward. And as Cristina was finally told and as Henry’s death was revealed, I was as devastated as Cristina.

We have lost so many……

Denny Duquette
George O’Malley
George’s Dad, Harold O’Malley
Meredith’s Mom, Ellis Grey
Meredith’s step-mom, Susan Grey
Mark Sloan
Lexie Grey
Reed Adamson
Heather Brooks
Charles Percy
Adele Webber
Henry Burton

Through the seasons we were afraid we’d lose Meredith in Puget Sound, or Callie in the car wreck, or Derek in the shooting or the plane crash, or Izzie as cancer and chemo tried to kill her, or Richard as he had to fight for his life in season 10.

I cried, I mourned the losses, I hated it, but I got it. George was a hero, and died like one. Henry was always going to succumb to his disease, but he got to love and be loved by Teddy before he did. Mark and Lexie shouldn’t have died in that stupid plane crash, but they did. Reed and Charles died by the hand of a stupid, grieving man as so many other survived being shot, or just survived the insanity in (mostly) one piece.

Loss after loss. Change after change. I got it. I hated it, but I got it. The fans waited through season 10, thinking it could be the final season. But we got the word that 2 more seasons were on tap, so I (and others I’m sure) accepted that season 12, next season, would and could very well be it.

But now, you have killed Derek Christopher Shepherd.

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The internet is awash with the tears and anger I feel too. All the questions I could possibly think of are being asked.

“WHY didn’t they fly him to a trauma center if they knew they were out of their depth??”
Call for a life flight and in 20 minutes, he could have touched down at Seattle Pres, or Grey Sloan…or God, ANY of the trauma centers. It’s Seattle for Christ’s sake! Keeping Derek in some small, incapable backwoods hospital was insane. And I hope that selfish, idiotic excuse for a “neurosurgeon” realizes that his latent ineptitude killed Derek. (There’s that anger…part 2 of grieving.)

“Why didn’t Meredith call Amelia before she pulled the plug?” Or Maggie, or Alex, or Richard, or Callie?? WHY was she alone??

“Why didn’t Derek get out of the middle of the damn road before he went digging for the phone? And cell reception was shite there anyway.” Seriously. He survived being shot, and a plane crash. Why would you kill him off in such in senseless way? Why would you kill him off anyway? Like I’ve seen on the fan sites….”Ship him off to DC for the year, but don’t kill him!”

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I’m heartbroken. Grey’s has always been about Meredith and Derek. It started on the day she met him, and the first day of her internship, and has twisted it’s way through the last decade or so of Meredith Grey’s life.

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So, now that Derek is gone, is this it? Is next week’s 2 hour “event” (f**k you Shonda!!!!) the end of the series? Is this the end of Grey’s?