Category Archives: blogging

7 Photos, 7 Days; Day 7!

Merry Samhain! Happy Halloween! And a good boo! to you all!

Today is my last day of my Photos From My Life series. Did you guys like anything in particular? I always think it’s interesting to see photos from someone else’s life. Where are they? What do they tend to take pictures of?

Some people take pictures of places, or things, moments, or other people so they can hide behind the lens instead of being in front of it. Some take pictures of places and people they love to remember.

As I was looking through my social media today, I counted how many of the past years I have thrown on scrubs and dressed up on Halloween as my alter ego: Meredith Grey. Since I created my personal Facebook page in 2008, I have dressed in scrubs 6 out of the last 9 years, with 2 other years as Alice (one was Evil Alice, inspired by Warehouse 13), and one year I was Sarah Sanderson. (and if you don’t know who that is, get your booootay over to Amazon and order Hocus Pocus stat!!)

This year I am dressing up as an Arkham inspired Steampunk Harley Quinn. (I’ll post pix tomorrow! The girl child is doing my make up!)

So, onward to the final Black & White Photo for my series!

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Merry Samhain! ❤ ~ Xun

7 Days, 7 Photos; Day 6

Hello Spoonies! I won’t say happy Monday because….well, does anybody like Mondays? On my Facebook page for the blog I try to remember to do “Music Mondays” because 1) any reason to listen to music is a good one! and 2) music helps reduce pain (and it makes a fabulous painscape!)

Today’s Photo:

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Tomorrow is day 7! Suggestions? Inspirations? Anything you hope to see?

❤ ~ Xun

 

7 Days, 7 Photos; Day 5

It’s a cool, rainy, windy Fall Sunday for us in the Northeast. And a bit somber for me today too, as I learn of my friend losing her Dad to cancer this morning. My own Dad passed, from cancer, 5 1/2 years ago so I understand my own experience with mourning the loss of a parent. I’m trying to word that right because I know my feelings and experience aren’t the same as hers, and I’m trying to remember that and respect it.

But it definitely feels like there are far too many of us in the Club now…

Cristina: “There’s a club. The Dead Dads Club. And you can’t be in it until you’re in it. You can try to understand, you can sympathize. But until you feel that loss… My dad died when I was nine. George, I’m really sorry you had to join the club.”
George: “I… I don’t know how to exist in a world where my dad doesn’t.”
Cristina: “Yeah, that never really changes.”
~ Grey’s Anatomy, S3; E12 Six Days, Part 2

And onward to today’s photo….

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Happy Sunday Spoonies! See you tomorrow for day 6! ~ ❤ Xun

7 Days, 7 Photos; Day 4

Happy Saturday! I love Saturday. It’s my favorite day of the week! I can be lazy and snuggle back under the covers just a little longer, or we can choose to go do something fun on a family adventure. Renn Fest season just ended for us and we always try to go at least twice during the 8 or 9 weekend run.

Movie nights, museum visits, trips up to The Kennedy Center. Saturdays usually have something good!

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See you tomorrow for day 5! ❤ ~ xun

7 Days, 7 Photos; Day 3

Happy Friday!

It’s day 3 of the 7 Days, 7 Black & White Photos Challenge and today I’m choosing a picture I took last week for one reason, but I’m posting it today for another reason. The rules say No explanations, so I’ll just leave you with the image and hope you are inspired!

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Gentle hugs and see you tomorrow! ❤ ~ Xun

7 days, 7 Photos; Day 2

Hello Spoonies! It’s day 2 of the 7 Days of Back & White Photos challenge. The only rules are: No people. No explanation. I’ll be posting one black and white photo from my life everyday for 5 more days after today.  If you would like to participate, please leave a comment and let me know so I can go check out your pictures too!

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Happy Thursday! See you tomorrow! ❤ ~ Xun

7 Days, 7 Photos; Day 1

Happy Hump day!

Some of my favorite bloggers are participating in the Seven Days, Seven Black & White Photos of Your Life challenge and I decided to participate after seeing Lisa’s (Life of an El Paso Woman) posts for the last couple of days. She invited readers and bloggers to participate so I thought it’d be fun! The only rules are: No people. No explanation. I’ll be posting one black and white photo from my life everyday for the next 7 days. If you would like to participate, I know I’d love to see your photos!

Day 1:

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See you tomorrow!

❤ ~ Xun

Processing Time

One of the biggest changes I have noticed since being diagnosed with my brain tumor (headaches, vision changes, and falling down the stairs 4 times so far notwithstanding) is that I have days I have trouble processing time. I can look at the clock 4 times in 5 minutes and not being able to connect what time it is.

I understand morning, afternoon, and evening but I will have whole days when I have trouble understanding the clock when I look at it. It doesn’t matter if I look at a digital clock or a traditional clock.

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For example, if I have plans or an appointment at 1:30 pm and I look at my clock and see it’s 11:00 am, I know I have time before I need to go, do, meet, see, ect. But I have days that I can look at the clock 3 times in 10 minutes and not understand what 11 am means, so I do the math in my head again and know I have 2 & 1/2 hours. But it’s just on these days I keep looking at the clock and it’s just difficult for me to understand it.

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I think maybe it’s because:
1) I already struggle with subjective, abstract ideas. In college, the class I had the most trouble with was Critical Thinking. I fought with my instructor because I didn’t like being graded on something subjective.
I also think the Phantom Time Theory might have something to it, and I find the whole idea that the date and time is what we say it is because we’ve set it at some specific time. Clearly I’m not a fan of daylight savings time.
2) I think maybe the part of my brain that understands abstract ideas might have been damaged by the tumor and the crazy lasers they were shooting into my brain. (okay….radiation therapy, close enough.)

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According to the many, many, many scans of my brain and my tumor, the mass seems to be in the left prepontine area, right up against my left 5th cranial nerve. It’s too close to my brain stem for surgery, so it’s me and my tumor trying to figure out how to exist. So I figure out how to back myself up with notes, alarms, or timers.

I think human beings, especially Americans, struggle to process time. In America, we typically use the Gregorian calendar based on the idea that it’s 365.25 days each year, based on solar cycles. Other countries, and some businesses, use the Julian calendar. I learned that when I worked for Prudential Insurance too many years ago for me to tell you when it was.

I even understand military time and that Americans seem to write the date differently. October 15, 2017 vice 15-10-2017.

But…brain tumor or no brain tumor, what would you change about how you handle abstract ideas like time if you didn’t know what the rules were?

Ch-Cha-Changes…..

There are a lot of moving pieces in my life. Like…..MY life isn’t moving, but there is a lot! of movement around me and a lot of change. And I get it. Life is change and movement, whether that might be forward, or backward, or temporary movement.

Anywho…

My oldest
1. enrolled in the second part of her program, which means along with classes and papers, and reading, and.. and… and… (because it’s college), she’ll be starting her clinicals soon as well. She’s going through all this schooling to be a radiographer. I thought she was going for Xray tech, but this so much more. She kicking ass, so give her a thumbs up!
2. Her boyfriend of a year just dropped her without really any reason. Forget a good reason, it was shit and it was selfish and it broke her heart.
3. So on top of getting into the program, she quit her job to focus on school, and her boyfriend tells her “we’re not compatible”. W T F?!
4. And then her fish died today. She’s having a rough week.

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My boy…well, not “boy”; 6 foot tall, 200 lbs (23 year old) man, but my only son and therefore still my boy is still plugging along at his training to be an electrician and he finishes in November. And he seems to like Northern California, so that’s all good stuff for him too.

But we are having a major shift in the house. My youngest has decided to go to the local public high school and get out there and meet teenagers and go do the high school experience. Which is awesome, don’t get me wrong, but she’s been homeschool since she was 6. I brought her home in 2009. We were just moving way too much at that point with the Navy closing NAS Brunswick, so I thought the better choice was to homeschool her under an accredited school to protect us, allow us to reach what she wants to learn, when she wants to learn and how she would learn. But it’s been 8 years now and she wants to start getting out into the world.

So, between random bouts of tears and panic attacks, I am getting the paperwork together to get this process started.

It just feel like a million things I’m directing traffic to, offering up time and whatever my girls need.

So if you need me, I’ll be hiding out in my blanket fort. With my tablet, my coloring book (and crayons), and maybe some snacks.

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The Leibster Award

I wanted to say Thank You SO much to Carly from My Hearing Loss Story for nominating me for this award. I started blogging in 2009 or 2010 (I think it was) as a way to figure out the changes life with chronic illness and chronic pain brought. That was post hip replacement/possible Fibro diagnosis/just diagnosed with Hashimoto’s. So in a short frame of time a lot of my life changed. I finished my degree program, started homeschooling my youngest, and moved just about once a year there for a while.

I have made some new friends and learned so much through my little blogging group and finding people that understand and share their own changes and frustrations. It’s nice to know we’re not alone!

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The rules for the Liebster Award:

  1. Acknowledge the blog that nominated you and display the award
  2. Give 11 random facts about yourself
  3. Nominate 11 blogs
  4. Notify them of the nomination
  5. Give them 11 questions to answer

 

11 Random Facts About Xun

  1. I am an only child.
  2. I have three kids of my own.
  3. I used to be a dancer, which is probably why my doctors missed hip dysplasia and all the symptoms that are now leading to an EDS diagnosis.
  4. I am a writer and had some of my work published in a book of poetry in 1999.
  5. I have 13 tattoos and 7 piercings.
  6. I was the first woman in my family to go to college since my great-grandmother.
  7. I have lived in 8 states.
  8. Alice in Wonderland is my favorite story (which lead to Xun in Wonderland!)
  9. My first car was a little ’78 Datsun that my best friend nicknamed “Corky”.
  10. My family goes to the Renaissance Festival every year and I have a full set of garb.
  11. Xunae was created from my WoW character and she’s my alter-ego (and the better, badass version of me!).

My questions from Carly:

  1. Where do you live? Maryland, USA (about 40 miles from Washington, DC)
  2. What is the most delicious food you have ever eaten? Oh! I could go on and on about this! I got to grow up in Hawaii and the food there is amazing!! But my favorite thing and the first thing that comes to mind is Vanilla Bean Creme Brulee.
  3. What do you like to do in your free time? Read (I *love* my OwlCrate subscription box!!), game (I play Diablo 3), watch movies…
  4. Three things you can’t live without… The cheesy answer? My kids. The truest answer? my meds. But the best answer in the spirit of this: books, being able to go be by the water when I need to think, and music.
  5. What is your guiltiest pleasure? cheesy rom coms
  6. Describe yourself in three words. brave, strong, creative
  7. What single quality do you most appreciate in people? honesty
  8. Say something nice about yourself… When I love someone, I love them completely and I will protect them with my life.
  9. Why did you start blogging? to connect with people, to share information, to have an outlet
  10. Something that makes you laugh? my kids, my cats, witty humor
  11. Something you want to achieve or do in the next 5 years. Get off my arse and get my book written.

My nominees for the Liebster Award are:

  1. Kara from Polishing Dookie
  2. Laura from RibbonRX
  3. Pamela from Living in a Limited World
  4. Wendy from Picnic With Ants
  5. Laura from Bipolar for Life
  6. Brittany from Shits & Giggles
  7. Kate from Kate is Rising
  8. Lisa from Life of an El Paso Woman
  9. Sheldon 
  10. Kayla from Intrestinal Fortitude
  11. Migraines From Hell 

My questions for my nominees:

  1. If you opened your eyes tomorrow in a whole new existence, what is the first thing you would do?
  2. What would you eat if you could only have one thing for an entire year?
  3. What’s your zodiac sign? Do you think it suits you?
  4. What is your perfect day?
  5. Who is your favorite author?
  6. Where would you like to visit?
  7. What is your favorite quote?
  8. What is your middle name?
  9. Savory or sweet?
  10. What is your favorite animal?
  11. Who do you look up to?

 

To my nominees: please don’t feel like you have to complete this – I took a couple of weeks before I wrote this up and it takes a bit of time. If you have the time and want to write this up, then please do (I would love to see the answers!), but if you don’t want to share too much info or you just don’t have the time (or energy!), please don’t feel pressured to. I just wanted to share and to let some of the people I read and have met through here how awesome I think they are!

*gentle hugs* and Happy Blogging! (And THANK YOU so much!!) ~ Xun