In June of 2014 (2 years ago), I was diagnosed with a left trigeminal meningioma and spent lots of time in scanners (CTs, MRIs, you name it…) before being sent up to Georgetown for a week of stereotactic radiosurgery (aka CyberKnife radiation). It’s like having radiation, but it’s sort of a surgery too. Mostly, it’s just like having 30 radiation sessions in a week.
I still have Irkle…
So named because he doesn’t do much except be irksome and irritating.
But he’s stable. Mostly.
Georgetown kicked me back to my local neurologist because Irkle is so close to my brain stem he’s inoperable. So there’s not much to do but keep an eye on him.
And burn my mask. Which I did last August at the one year mark of surviving radiation.
So, two years of scans and meds and many, many doctors later, two of my doctors decided I need a repeat EEG. Not fun, but whatever, because any seizure activity I seem to have seems more absence seizure that flop-around-like-a-fish seizure. And Irkle’s not giving up much info.
So today was EEG day…
The worst part about it is washing all the crap out of my hair after. And the hyperventilating part, but today’s wasn’t so awful. And I had a really nice tech.
Okie dokie…..all wired for sound and picture. Time for the pretty lights and the heavy breathing.
So, now we see if my brain is doing crazy brain stuff. Results tbd.