An MD’s Perspective…

As a chronic pain patient, I have to follow blogs and news relating to the management of intractable pain. Because in addition to the “surprise urine screening” and all the damn hoops and rules I have to jump through just to try to survive, I need to know what’s going on and what my rights are.

If you’ve ever been to the doctors because you were in pain, you know that you’re in trouble the second you say “pain relief”. And Gawd help you if you happen to have ovaries too, but that’s another blog. I don’t know when, and I don’t know how, but somewhere along the way asking for pain management or relief equaled “drug seeker/addict”. I’ve been called both, and I’ve fought to have crap like “anxiety disorder”, “eating disorder”, or “possible addiction issues” removed from my medical file.

Because apparently Cervical Spondylosis, chronic migraines (and oh yeah…..that traumatic brain injury I had when I was 7), and now an artificial hip, and an inoperable brain tumor do not make me anything but a “drug seeker”.

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However….comma….I am pretty lucky because I have a pain specialist that sees me every 4 to 8 weeks, listens to me, and allows me to handle a lot of things by messaging them. I also have pretty good insurance, and I know that, and I’m grateful.

But, when I got the latest news from Pain News Network in my email today, I read through one of the first articles they recommended: a perspective of living with chronic pain from a medical doctor. 

http://www.painnewsnetwork.org/stories/2016/6/20/pain-care-shouldnt-be-political-theater

Wow. I nodded all the way through the reading. Oh thank God….someone on the inside that gets it. Please read, please share.

 

(BTW, I realize I haven’t been blogging as much lately. There’s a lot going on in my life that’s not necessarily for public consumption. But I *will* update soon on this year’s brain scans. ~ X)

2 responses

  1. It’s nice of that doctor to speak out, but he’s too late. And even though being a doctor gives him a certain amount of credibility, he’s also a pain patient, which decreases his credibility. For current chronic pain patients, I think the only thing you have to worry about is the current morphine equivalent of your medications. If you’re under the CDC’s limit, you should be fine — until the day that you need to increase your dosage past the limit. But when medications become less effective, you can always try another, instead of a dosage increase. Not the best option, but better than not having any options. I think it will be mostly new pain patients who are denied access to painkillers.

    I guess the other thing to worry about is how long your doctor will be practicing, if she gets sick or becomes disabled, changes practices, stops taking your insurance… I lost my doctor of 8 years after he passed away (the day before my monthly appointment). Perhaps it would be a good idea to be on the look out for another pain doctor, just in case.

    I can’t help but wish that sometime in the future, doctors are punished for abandoning patients (and medical science), because that’s what the vast majority of them have done. Doctors have either kept silent or joined the dark side. I’m disgusted with the lot of them.

    Liked by 1 person

    1. All true! You’re very well researched in all of this! I do worry about just being cut off. Like I’ve written before, between withdrawal and lack of support for the pain, if it gets out of control, I don’t think I’m going to be in a very good place. Suicide may not be completely off the table. But my husband is determined to send me to my mom’s if something happens (she lives in Cali….a much more progressive stance than where I’m at!)

      Liked by 1 person

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