As a chronic pain patient, I have to follow blogs and news relating to the management of intractable pain. Because in addition to the “surprise urine screening” and all the damn hoops and rules I have to jump through just to try to survive, I need to know what’s going on and what my rights are.
If you’ve ever been to the doctors because you were in pain, you know that you’re in trouble the second you say “pain relief”. And Gawd help you if you happen to have ovaries too, but that’s another blog. I don’t know when, and I don’t know how, but somewhere along the way asking for pain management or relief equaled “drug seeker/addict”. I’ve been called both, and I’ve fought to have crap like “anxiety disorder”, “eating disorder”, or “possible addiction issues” removed from my medical file.
Because apparently Cervical Spondylosis, chronic migraines (and oh yeah…..that traumatic brain injury I had when I was 7), and now an artificial hip, and an inoperable brain tumor do not make me anything but a “drug seeker”.
However….comma….I am pretty lucky because I have a pain specialist that sees me every 4 to 8 weeks, listens to me, and allows me to handle a lot of things by messaging them. I also have pretty good insurance, and I know that, and I’m grateful.
But, when I got the latest news from Pain News Network in my email today, I read through one of the first articles they recommended: a perspective of living with chronic pain from a medical doctor.
Wow. I nodded all the way through the reading. Oh thank God….someone on the inside that gets it. Please read, please share.
(BTW, I realize I haven’t been blogging as much lately. There’s a lot going on in my life that’s not necessarily for public consumption. But I *will* update soon on this year’s brain scans. ~ X)