30 Things About My Chronic Illness…

1. The illness I live with is: Fibro, Degenerative Disc Disease in C5/C6 with nerve damage in both arms, & Congenital Hip Dysplasia
2. I was diagnosed with it in the year: 2007
3. But I had symptoms since: 2001, 1992 in my hip
4. The biggest adjustment I’ve had to make is: physical capabilities.I can’t lift or do as much as I used to. And I forget a lot of stuff now.
5. Most people assume: I’m stronger than I feel sometimes.
6. The hardest part about mornings are: getting out of bed.
7. My favorite medical TV show is: Grey’s Anatomy
8. A gadget I couldn’t live without is: my phone
9. The hardest part about nights are: falling asleep
10. Each day I take __ pills & vitamins. (No comments, please): 25
11. Regarding alternative treatments I: have tried everything.
12. If I had to choose between an invisible illness or visible I would choose: invisible, but I think eventually everything becomes visible.
13. Regarding working and career: I would still choose my vocation as a homemaker and mother/wife.
14. People would be surprised to know: I’ve lost 50 pounds and my weight is something I struggle with. It would be easy to gain it back.
15. The hardest thing to accept about my new reality has been: that I can’t dance anymore.
16. Something I never thought I could do with my illness that I did was: make such a difference in the lives of so many other people and become the advocate I have.
17. The commercials about my illness: are ridiculous.
18. Something I really miss doing since I was diagnosed is: dancing.
19. It was really hard to have to give up: independence.
20. A new hobby I have taken up since my diagnosis is: blogging.
21. If I could have one day of feeling normal again I would: enjoy the freedom to keep up with everyone else.
22. My illness has taught me: compassion and gratitude.
23. Want to know a secret? One thing people say that gets under my skin is: It’s all in your head.
24. But I love it when people: listen and learn. I love inspiring compassion.
25. My favorite motto, scripture, quote that gets me through tough times is: You cannot calm the storm so stop trying. What you can do is calm yourself.
26. When someone is diagnosed I’d like to tell them: The pain doesn’t go away, you make room for it. And you’re stronger than you think.
27. Something that has surprised me about living with an illness is: being surrounded by so many people so much older than me at my specialists.
28. The nicest thing someone did for me when I wasn’t feeling well was: massage my back & shoulders, let me do what I needed to as I worked to feel better.
29. I’m involved with Invisible Illness Week because: I believe if we all speak out, we’d be surprised at how many people you have something in common with.
30. The fact that you read this list makes me feel: blessed to have someone that reads my words and hopefully finds inspiration or compassion.

Thoughts? Comments? Talk to me!

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