I have fight in me today. I’m working my way off all the unnecessary meds and fighting to get food down. It might take me close to an hour to get a yogurt down (Greek yogurt…not that slimy American stuff), but I got it down and that’s 10 grams of protein. Ten grams of energy to fight back!
I saw a new neurologist this morning (at the ungodly hour of 8 o’clock!), but it was totally worth dragging my ass out of bed at 6:30. He had reviewed my file and performed the best, most comprehensive exam I have had since my symptoms started. He was great! He listened and examined me thoughtfully, and gave me good news.
I do not have MS, even though I meet some of the criteria, I don’t have the right symptoms and he (Dr. Epstein….who came down from Bethesda) is confident that I really don’t even have Fibro. Basically, what it boils down to is a myofascial pain syndrome stemming from the fact that my left leg is close to an inch shorter than my right leg and my body is kicking it’s own ass trying to compensate.
Additionally, all the weird pain-y crap in my arms is due to my ulnar nerve being compressed near my elbow. You know that nerve that you hit when you smack your funny bone? Yeah, that one is compressed…Doc says it’s not that uncommon, especially in thin people. (Side note: all this crap has made me lose close to 5 pounds in the last week and a half….so, yay for thin and my pants fitting better, but apparently there are issues if one is thin, sort of like if one is overweight).
Finally, because I am such a raging insomniac, I’m not getting restful, restorative sleep and that is creating a viscous cycle. So, the plan of attack is to get me these brace/pad things to wear on my elbows when I sleep (I know, weird, right??) that will alleviate those symptoms. Doc suggested a physical medicine/sports medicine specialist for the myofascial symptoms (muscle pain issues for those not familiar with the term). All of which will hopefully lead to the ability to sleep better…thus allowing me more restorative sleep and hopefully breaking the cycle.
This is the first time I’ve had a doctor break down the symptoms by themselves and examine each one without trying to group everything together and put it all in a pretty little box. Apparently my previous pain specialists (while working with the right intentions) were doing the wrong things. I don’t have a central nervous system issue. It’s more of a peripheral nerve issue in my arms and a muscle pain issue in my shoulders.
This I can work with. This I am actually excited about because there is definition and hope! I’ll wear my silly little pads for sleeping in on my elbows and I’ll go to physical therapy for muscle pain. I’ll get shoes that help even me out. I can get better.
Thank you to the neurologist that traveled all the way down to our remote little Southern Maryland from Bethesda and helped me so much!